Health Rising | Cort Johnson | 23 novembre 2022
Lucie’s recovery story brings its own different slant: when after years of searching Lucie happened on the right blend of treatments for her – they turned out to be astounding simple (and inexpensive as well.)
Sky News | Rowland Manthorpe | 16 novembre 2022
Sky’s technology correspondent Rowland Manthorpe has suffered with long COVID for more than 18 months, and documented his continued struggle. He also explore links between long COVID and ME/CFS (myalgic encephalomyelitis) and the impacts of the lack of fundings for ME over the last decades.
Health Rising | Cort Johnson | 13 novembre 2022
Maureen Hanson’s group at Cornel continues to pound out fascinating results. The latest one – a preprint, “Single-cell transcriptomics of the immune system in ME/CFS at baseline and following symptom provocation” – again demonstrates why the NIH-funded ME/CFS centers are so important – and why we want and need more of them. Preprint mentionned : https://www.biorxiv.org/content/biorxiv/early/2022/10/17/2022.10.13.512091.full.pdf
Open Medicine Foundation | 8 novembre 2022
ME/CFS is a complex disease that affects multiple systems in the body. Traditionally, the medical field focuses on one system at a time, as in the way medical specialists are organized. The goal of this study is to identify ME/CFS’s biomolecular signature: a combination of unique biochemical characteristics that are present only in ME/CFS. It’s like painting a whole picture of the disease in biomolecular terms. The study will use Raman Spectroscopy (RS), a chemical analysis technique that can analyze a sample without destroying it.
Preprints | Kingdon, C.C.; Lowe, A.; Shepherd, C.; Nacul, L. | 01 novembre 2022
*Preprint version, not peer-reviewed at the time of publication* This article summarises the key points in the new guideline with explanations of the roles of GP’s and specialist teams and the importance of ongoing review and support.
Yale School of Medicine | Isabella Backman | 01 novembre 2022
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a highly disabling, severe condition that has been largely overlooked and even questioned as an illness by medicine and researchers for decades. But now, following the onset of the COVID-19 pandemic, as many as one in eight infected people, according to Akiko Iwasaki, PhD, Sterling Professor of Immunobiology, are developing “long COVID,” in which symptoms persist for weeks, months, or years post-infection and some are developing symptoms indistinguishable from ME/CFS.